Million Dollar Bike ride for research of STXBP1-related disorders
19 July 2024
On Saturday June 8, 2024, our teams successfully biked the European Million Dollar Bike Ride, a fundraising event to raise money for research into STXBP1-related disorders! Together they raised more than 12.000 euros.
The teams consisted of researchers and clinicians from Neurospector, the research departments at VU University and Amsterdam UMC, Radboud UMC and University of Antwerp, as well as family members of STXBP1 patients. Each team biked more than eighty kilometers to the mid-point in Dordrecht, halfway between the labs of Amsterdam and the labs of Antwerp. In Dordrecht, all bikers were welcomed by supporters, family members of patients and colleagues.
We would like to thank all cyclists for their great achievement, the supporters for their enthusiasm and the sponsors for their donations. It has been heartwarming to see the overwhelming support for our cause. In total we raised € 6.359,00 and Penn State University will double this amount.
All donations have been transferred to the Million Dollar bike ride organization in the United States (team STXBP1). The Penn Medicine Orphan Disease Center will distribute the funds to the international scientific community through grant proposal applications. They will monitor and manage progress of the science and spending of the funds.